Welcome to the Sickle Cell Association of Ontario
The Sickle Cell Association of Ontario (SCAO) is Ontario's oldest organization dedicated to serving the sickle cell community. Established in 1981, SCAO continues to be the leading voice in Ontario for community-based awareness, advocacy, education, research, and support for individuals, families and communities affected by sickle cell disease.
SCAO Founder and Executive Director Lillie Johnson: Our founder Lillie Johnson received the Order of Ontario in 2011 for her tireless work to improve the community response to sickle cell disease. Lillie's decades-long lobbying led to sickle cell disease being included in standard newborn screening in Ontario.
Learn more about Lillie Johnson.
What is Sickle Cell Disease?
he term sickle cell disease (SCD) describes a group of inherited red blood cell disorders. People with SCD have abnormal hemoglobin, called hemoglobin S or sickle hemoglobin, in their red blood cells.
Hemoglobin is a protein in red blood cells that carries oxygen throughout the body.
“Inherited” means that the disease is passed by genes from parents to their children. SCD is not contagious. A person cannot catch it, like a cold or infection, from someone else.
People who have SCD inherit two abnormal hemoglobin genes, one from each parent. In all forms of SCD, at least one of the two abnormal genes causes a person’s body to make hemoglobin S. When a person has two hemoglobin S genes, Hemoglobin SS, the disease is called sickle cell anemia. This is the most common and often most severe kind of SCD.
Hemoglobin SC disease and hemoglobin Sβ thalassemia (thal-uh-SEE-me-uh) are two other common forms of SCD.
Some Forms of Sickle Cell Disease
What's Happening at SCAO
Annual General Meeting - June 27, 2016
Come out to our new location in the York West area of Toronto and celebrate our Open House with a Ribbon Cutting Ceremony on Sunday, June 12th from 2pm to 5pm. Our new address is #205 - 4610 Dufferin Street, North York.*
Meet and mingle with the Board of Directors and learn about why we are still educating about Sickle Cell Disease for 35 years! Meet our supporters and especially our community!
All is welcome as advertised in Snapd https://northyork.snapd.com/#/events/view/954170
*Wheelchair and Stroller access is available.
Thank you to our supporter Campisi Law https://www.campisilaw.ca/
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